

Engaging persons with lived experience means intentional partnering with patients, families or communities throughout the planning, delivery and evaluation of health services to improve quality and safety (Agency for Healthcare Research and Quality, 2016; Canadian Patient Safety Institute, 2017; Nelligan et al., 2002; RNAO, 2015).
This involves engaging persons with lived experience:
SOURCES: Carman et al., 2013; Liang et al., 2018; Canadian Patient Safety Institute, 2017.
Persons with lived experience bring unique and valuable insights to a change. They:
SOURCES: Health Quality Ontario, 2017; RNAO, 2015; Tong et al., 2019.
Engaging persons with lived experience ranges from consultation to involvement, to partnership and shared leadership, depending on the desire of all involved (RNAO, 2015).
The readiness of a change team to accept and embrace persons with lived experience, as part of a change initiative, can impact outcomes.
If your organization has already established the engagement of persons with lived experience, your organization may already have community advisors or advisory councils.
You and your team can first assess whether your organization already has a culture that commits to engaging persons with lived experience.
Once you and your change team have confirmed you are committed to including persons with lived experience as part of your change initiative, it may be helpful to focus on several phases.
Watch recorded presentations from change agents on examples of successful engagement of persons with lived experience with the implementation of BPGs.
You and your team may consider collecting continuous feedback from persons with lived experience to get input on how you can improve their experience during the partnership.
In early 2018, Kidney Health Australia (KHA) developed a guideline for managing the percutaneous renal biopsy for individuals with chronic kidney disease (CKD) (Scholes-Robertson et al., 2019).
Signs that you and your change team are making progress with person and family engagement.