The Registered Nurses’ Association of Ontario (RNAO) is creating new opportunities, and strengthening existing partnerships, to implement a Patient and Public Engagement (PPE) strategy. We are recruiting patient/public partners to advise RNAO.
Why patient and public engagement?
There is a need for health and health-care services to reflect the voice of patients, families, and members of the public. This strategy will advance RNAO’s commitment to develop a transparent, robust, and collaborative culture, organization, and ultimately, health-care system.
What does a patient/public partner do?
Partners will contribute their opinions and advise on activities, such as aiding in the development of health resources, sitting on guideline development panels, attending focus group sessions, and discussing personal experiences with health and the health-care system.
How can I get involved?
We are recruiting members for a Patient and Family Advisory Council (PFAC) that would meet approximately once a month by teleconference or webinar, and one to two full days annually in person. Travel expenses incurred will be reimbursed.
RNAO believes that patient and public engagement is more than a responsibility or requirement. The PPE strategy implemented across all departments of RNAO will follow the ethos of patient- and family-centred care and will consider the following evidence as its foundation:
- PPE can lead to improved health outcomes, more relevant research, better service quality and increased patient safety. It can build trust and communication between organizations and those affected by health-care decisions and resources.
- PPE is a democratic process whereby citizens have opportunities to voice their opinions on how publicly funded programs are carried out in a way that best benefits them directly, as the target population. As such, PPE can be an avenue to patient empowerment and patient activation, involving individuals as partners, working “with” them rather than “for”.
- PPE acknowledges that patients have an expert understanding of their own health and illness, through lived experience. This expertise can lend a firsthand perspective to identify the most relevant, effective, and cost-efficient methods in health-care, health programs, research, and resource design.
RNAO is also offering engagement opportunities in the following departments:
- Best Practice Guideline (BPG) Development,
- BPG Implementation,
- BPG Evaluation,
- Informational Technology (IT), and
- Nursing and Health Policy
RNAO continues to speak out on emerging issues that affect nurses and the nursing profession, health and health care. The need for health care to reflect the voice of patients and their families has been a central focus of nurses, and RNAO is committed - with your help - to advancing this vision.
Patients Included Charter Clauses
RNAO would like to demonstrate our commitment to incorporating patients, as experts through their health experiences, while ensuring they are neither overlooked, nor excluded from our activities. As a result of patients and caregivers being at the forefront of RNAO’s previous patient and public engagement work, and the planning of the agenda, we are proud to announce this event is recognized as Patients Included.
Visit the Patients Included website at https://patientsincluded.org/ for more information, and follow the hashtag #PatientsIncluded to stay up to date on Twitter.
- Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers.
We acknowledge the support and active participation of many patients and caregivers who have volunteered their time to advise the RNAO planning team and the patient co-chair on the design of the event, including the agenda, forum, and facilitation of robust discussion on patient and public engagement.
- Patients or caregivers with experience of the issues addressed by the event participate in its delivery, and appear in its physical audience.
Our co-chairs and participants (audience) are comprised of patients, caregivers and members of the public, and will formulate the discussion of topics relevant to patient and public engagement for RNAO.
- Travel and accommodation expenses for patients or carers participating in the advertised program are paid in full, in advance. Scholarships are provided by the conference organizers to allow patients or carers affected by the relevant issues to attend as delegates.
All participants will receive travel and accommodation expense reimbursement for this free of charge RNAO PPE event. RNAO acknowledges that costs incurred for travel and accommodation can impact patients/public ability to attend and thus have committed to all travel and accommodation expenses being paid in full and in advance if required.
- The disability requirements of participants are accommodated. All applicable sessions, breakouts, ancillary meetings, and other program elements are open to patient delegates.
The Hyatt Regency Toronto venue has been chosen with care to insure accessibility to all participants. The Hyatt Regency Toronto understands the obstacles that people with disabilities have when traveling to hotels and has expanded their services and facilities to provide comfortable accommodation. RNAO is an organization committed to ensuring accessible services and communications to individuals with disabilities, and has asked participants to include details for any accommodations they may require in their registration.
- Access for virtual participants is facilitated, with free streaming video provided online wherever possible.
RNAO will make parts of the day available via recorded video, and proceedings of the day will be posted online.